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EFFORTS — PO Box 20241
Kansas City, MO 64195–0241
Ph: 1–866–END–COPD
The information on (or referenced by) the EFFORTS’ website and discussion lists is not intended or implied to be a substitute for the professional medical advice of your own healthcare providers.

As a patient advocacy group, we rely on your contributions/donations to maintain the mail list group, this website, and help board members attend conferences and to increase our participation in research.

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Lung and Heart Health Websites

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  • World Health Organization Unbiased COVID–19 Information
    From the Website:
    WHO works worldwide to promote health, keep the world safe, and serve the vulnerable.

    Our goal is to ensure that a billion more people have universal health coverage, to protect a billion more people from health emergencies, and provide a further billion people with better health and well–being.

  • ALA — The American Lung Association
    From the Website:
    The American Lung Association is leading the way in helping all Americans breathe easier. Thanks to our donors. volunteers. program and event participants. and staff. we are America’s trusted source for lung health education. lung disease research. support. programs. services and advocacy.
  • The Alpha–1 Foundation
    From the Website:
    The Alpha–1 Foundation is committed to finding a cure for Alpha–1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha–1 worldwide.
  • American Association for Respiratory Care
    From the Website:
    The AARC encourages and promotes professional excellence, advances the science and practice of respiratory care, and serves as an advocate for patients and their families, the public, the profession and the respiratory therapist.
  • American College of Chest Physicians (ACCP)
    From the Website:
    The American College of Chest Physicians is the global leader in advancing best patient outcomes through innovative chest medicine education, clinical research, and team–based care…The CHEST Foundation, our philanthropic arm, provides members with grants, patient education tools, and other resources to help their patients live and breathe easier.
  • American Thoracic Society
    From the Website:
    The American Thoracic Society improves global health by advancing research, patient care, and public health in pulmonary disease, critical illness, and sleep disorders. Founded in 1905 to combat TB, the ATS has grown to tackle asthma, COPD, lung cancer, sepsis, acute respiratory distress, and sleep apnea, among other diseases.
  • Australian Lung Foundation
    From the Website:
    Lung Foundation Australia is working to improve lung health and reduce the impact of lung disease for all Australians.
  • British Lung Foundation
    From the Website:
    We’re the only UK charity looking after the nation’s lungs. With your support, we’ll make sure that one day everyone breathes clean air with healthy lungs.
  • Canadian Lung Association
    From the Website:
    The Lung Association is the leading organization in Canada working to promote lung health and prevent and manage lung disease. We do this by funding vital research, pushing for improved treatments, smarter policies, or supporting patients in managing their health.
  • Clinical Trials.com
    From the Website:
    ClinicalTrials.com is a comprehensive resource for trusted information about medical research studies, also called clinical trials.
  • COPD Foundation
    From the Website:
    The COPD Foundation was established to undertake initiatives that result in expanded services for COPD and improve the lives of individuals affected by COPD. The Foundation’s activities focus on achieving these results through research, education and advocacy programs that will lead to prevention, and someday, a cure for this disease.
  • COPD Support Ireland
    From the Website:
    COPD Support Ireland is an advocacy and support organisation, driven by people living with COPD. Our mission is to maximise the quality of life of people living with or at risk of COPD and to support those who care for them.
  • European Reference Network — Lung
    From the Website:
    The ERN–LUNG is a network of European healthcare providers dedicated to ensuring and promoting excellence in care and research for the benefit of patients affected by rare respiratory diseases.
  • Japanese Respiratory Society
    Japan is #10 World Health Organization ranking of health systems in 2000 in Performance/Overall Health System Performance. From the Website:
    The mission of JRS is to contribute to the promotion of respiratory health and welfare by engaging innovative science, culture, education, and clinical research in the field of respiratory health and diseases. Our vision is to work toward a world without lung diseases, and where lung diseases are cured.
  • The LAM Foundation
    From the Website:
    The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure,for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.
  • Lovelace Respiratory Research Institute
    From the Website:
    Lovelace stands today as the nation’s largest independent, not—for—profit organization conducting basic and applied research on the causes and treatments of respiratory illness and disease… Lovelace research includes major programs in fundamental lung biology, lung cancer detection and prevention; chronic obstructive pulmonary disease, environmental inhalation hazards, and therapies for chemical, biological, and radiation exposures; and preclinical studies of new pharmaceuticals and clinical trials.
  • Lung Center of the Philippines
    Website is may give a warning. From the Website:
    The Lung Center of the Philippines (LCP) was established through Presidential Decree No. 1823 on January 16, 1981 to provide the Filipino people state–of–the–art specialized care for lung and other chest diseases.
  • Lungenemphysem–copd.de
    German website for Emphysema [In German] The following was translated from German from their Website:
    On these web pages you can retrieve all information such as meeting place, address, event dates, contacts and programs of our existing regionally active self–help groups.
  • Lung Valves for Friends
    This is a private Facebook Group. From the Group:
    We are a group of people suffering severe COPD who are now connected by the Zephyr valve procedure. Since this writing, we also have members with or waiting for Spiration valves. We are those who had the procedure or want it, as well as our caregivers and loved ones. Our mission is to support each other.
  • Mesothelioma.com
    From the Website:
    At Mesothelioma.com, our mission is to educate patients, their loved ones and the general public about this rare cancer and the toxin that causes it, asbestos. We strive to help those impacted by mesothelioma get the medical information, resources and legal connections they need at every step of their cancer journey.
  • National Emphysema Foundation
    From the Website:
    This site is for the benefit of our loyal readers to enable them to better cope with and understand the nature of emphysema and COPD. Throughout each year, we will present items of interest related to this disease including new research, current treatment initiatives, and innovative ways of coping. As we move forward we will strive to improve and expand our web site to meet the needs and wishes of our readers.
  • National Heart. Lung. and Blood Institute
    From the Website:
    The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood disorders and enhance the health of all individuals so that they can live longer and more fulfilling lives.
  • No Air To Go
    From the Website:
    Welcome to our little website… where you’ll learn about two interstitial lung diseases, IPF (Idiopathic Pulmonary Fibrosis) and Sarcoidosis, from patients sharing their experiences.

    Our Compilation of Pulmonary Definitions provides quick reference to FAQs from online support groups. Its abbreviations & acronyms section is a “list with a twist” — with links to the glossary for further information.
  • Oman Respiratory Society
    Oman is #8 World Health Organization ranking of health systems in 2000 in Performance/Overall Health System Performance. From the Website:
    Oman Respiratory Society since its inception is determined to spread awareness about the diverse respiratory ailments not only at the health care personnel level but also at the public and societal levels. We are hoping that this website can be used as a tool to showcase our past and future activities and serve as an informative and educational tool.
  • PERF The Pulmonary Education and Research Foundation
    From the Website:
    PERF is a small, but vigorous and dedicated Foundation to provide help for patients with chronic respiratory disease through education and research.

    PERF focuses on practical projects which, in the short term, bring benefits to patients with pulmonary disease.
  • Pulmonary Hypertension (PH) Support Group [Singapore]
    Singapore is #6 World Health Organization ranking of health systems in 2000 in Performance/Overall Health System Performance. From the Website:
    One of our main goals include plans for more events to increase awareness and to provide support to PH patients and their caregivers. Many are not aware of PH, the complexity of the disease, cost of medications and the fatality rate resulting from poor access to treatments. It is PH Singapore’s goal to create awareness of Pulmonary Hypertension, reach out to more patients in facilitating mutual support, and ultimately assist patients in obtaining medications and treatments through fund raising and other channels.
  • The Pulmonary Paper
    From the Website:
    Since 1988 The Pulmonary Paper has provided education and support to those who live with COPD (hronic Obstructive Lung Disease), Asthma, Pulmonary Fibrosis and other chronic lung diseases. Our newsletter offers practical advice, announcements of new medications and treatments, and personal tips and insight from others who cope with the trials of daily living.

    NOTE: It has been the official newsletter for EFFORTS since 10/27/99.
  • Right2Breathe or Right2Breathe Facebook
    From the Website:
    Right2Breathe® Inc. is a 501 (c) (3) non–profit organization based in New Jersey, created by two passionate Drag Racers who have a personal mission to improve the quality of life for those that live with respiratory difficulty, illness or disease. We manage the Right2Breathe® Project which is a robust, grass–roots marketing Lung Health Education, Awareness and Screening Campaign hosted at public venues ranging from automotive to sporting events in the United States.
  • Second Wind Lung Transplant Association
    From the Website:
    Second Wind is dedicated to improving the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, caregivers and friends by providing support, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.
  • World Health Organization
    From the Website:
    WHO works worldwide to promote health, keep the world safe, and serve the vulnerable.

    Our goal is to ensure that a billion more people have universal health coverage, to protect a billion more people from health emergencies, and provide a further billion people with better health and well–being.