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Clinical Trials
LEEP Losartan Effects on Emphysema Progression LEEP is a randomized clinical trial evaluating the effect of Losartan in helping people
with Chronic Obstructive Pulmonary Disease (COPD) with emphysema – a disease of the lungs. We are looking for adults 40
years of age or older, current or former smokers, with COPD to join our study. The study is conducted in different states
across the country.
Everyday Support & Explanations
COPD Pocket Consultant Guide App: Ios and Andriod, Support the treatment and management of COPD, therapy chart with the latest
medications, inhaler instruction videos, depression and anxiety screeners, a new pulmonary referral checklist and much more
Educational Videos and Pocasts: Learn about COPD and healthier living
Glossary of COPD Words and Terms
Haven’t Seen a Doctor and Not Sure if You Have COPD? Take the Canadian Lung Health Test
Causes, Symptoms, & Overviews
- Breathing Techniques
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, Rehabilitation
- Medicines & Devices
- Nutrition
- Oxygen, Oxygen Equipment & Oximeters
- Sleep Disorders, Apnea
- Stem Cell Article from Jim Nelson
- Surgery (Transplant, LVRS, BVR, Stents)
- Travel (including O2 on airlines)
Suggested Inhaler Sequence — Previous
Suggested Inhaler Sequence — Current
Oxygen Manifesto,
Part 1: Advice from 3 Respiratory Specialists Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen
Expert Ryan Diesem
Published March 27, 2019
Oxygen Manifesto,
Part 2: the Devices (Advice from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen
Expert Ryan Diesem
Published June 19, 2019
American Association of Cardiovascular & Pulmonary Rehabilitation — AACVPR Resources
10 Exercise Myths and Truths: Advice from a Respiratory Specialist Noah Greenspan
Published April 12, 2019
Pulmonary Rehab Alternatives: Can’t access pulmonary
rehabilitation? Wonder what to do after completing pulmonary rehabilitation?
Find a Local Support Group
Find a Physician — AMA
Hospitals Offering Zephyr Valve Treatment
Members Stories on Valve Trials & Treatments
Finding Insurance, Reinbursement and other Financial Assistance
Medicare Home Oxygen Reimbursement
Medicare, Medicaid and Social Security
Medicare.gov: Find and Compare Information about Hospitals
Getting Assistance: From the Government, Social Services
and other Misc Places
Must Read Publications
COPD Foundation’s Slim Skinny Reference Guide®
Adventures of an Oxyphile 2 Free download of the second edition
Adventures of an Oxyphile 2 Free Audiobook download of the second edition
PulmCC Free weekly email with latest in pulmonary and critical care
The Pulmonary Paper: This is a paid subscription
Click here for more books
Special Interest Patient Surveys
COPD PPRN: Join the COPD Patient–Powered
Research Network to help move COPD research forward
Members Personal Pages and Profiles
Stigma and Stereotypes
New Survey 2007 Spiriva Update
Trans Tracheal Survey
Smoking & Tobacco
Still Smoking with Emphysema?
Cigarette Anyone?
Patient Stories
Quitsters–Stop Smoking Group
Questions and Answers by Professionals
Q & A Oxygen Equipment: (Pete’s Posts)
Q & A Medical: Drs Karpick, Yeager and Petty
Q & A Respiratory Therapy/Specialists
Q & A Transtracheal Oxygen (TTO)
Q & A Depression and COPD
Miscellaneous
American Lung Association
Lots of Links Helpful Sites from the US and around the World
New Meds, Trials, Investigational Equipment and Studies
Verona Starts Phase 2b Trial to Test Nebulized Ensifentrine as Add–on Therapy
Published May 28, 2019
The CAPTURE Study: Validating a Unique COPD Case Finding Tool in Primary Care (Aim)
UK 2019 — UK Trial Now Enrolling:←Article Assess Beta–Blocker’s Ability to Lessen Flares in COPD Patients
Study→CHaRT link
2019 — Portable Oxygen Concentrator Improvements to Physical Activity, Oxygen Usage,
and Quality of Life in Chronic Obstructive Pulmonary Disease Patients Using Long–Term Oxygen
Therapy
2019 — Recruiting for COPD & Sleep Apnea Study: The COPD Foundation and American Sleep Apnea
Association O2VERLAP Study
RENEW and PneumRx™ Endobronchial Coil System: PneumRx® Coils are an investigational device in the United States and are
under evaluation for the treatment of severe emphysema, limited by United States law to investigational use. It is not available
for commercial sale in the United States.
Clinical Trials–Center Watch List
ClinicalConnection (US and International Trials)
Clinical Trials GPS
Clinical Trials — Government List
COPD Clinical Research Network
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