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EFFORTS — PO Box 20241
Kansas City, MO 64195–0241
Ph: 1–866–END–COPD
The information on (or referenced by) the EFFORTS’ website and discussion lists is not intended or implied to be a substitute for the professional medical advice of your own healthcare providers.


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Everyday Support and Explanations Including Contacts and Surveys


Clinical Trials

LEEP Losartan Effects on Emphysema Progression LEEP is a randomized clinical trial evaluating the effect of Losartan in helping people with Chronic Obstructive Pulmonary Disease (COPD) with emphysema – a disease of the lungs. We are looking for adults 40 years of age or older, current or former smokers, with COPD to join our study. The study is conducted in different states across the country.


Everyday Support & Explanations

COPD Pocket Consultant Guide App Ios and Andriod, Support the treatment and management of COPD, therapy chart with the latest medications, inhaler instruction videos, depression and anxiety screeners, a new pulmonary referral checklist and much more

Educational Videos and Pocasts Learn about COPD and healthier living New Videos added October 2019

Glossary of COPD Words and Terms

DailyMed Official provider of FDA label information

Haven’t Seen a Doctor and Not Sure if You Have COPD? Take the Canadian Lung Health Test

Causes, Symptoms, & Overviews
- Breathing Techniques
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, Rehabilitation
- Medicines & Devices
- Nutrition
- Oxygen, Oxygen Equipment & Oximeters
- Sleep Disorders, Apnea
- Stem Cell Article from Jim Nelson
- Surgery (Transplant, LVRS, BVR, Stents)
- Travel (including O2 on airlines)

⭐ COPD Exacerbations: A Patient and Physician’s Perspective John Linnell, John R Hurst November 8, 2019

Suggested Inhaler Sequence — Previous
Suggested Inhaler Sequence — Current


Oxygen Manifesto, Oxygen Manifesto, Part 1: Advice from 3 Respiratory Specialists Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published March 27, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 2: the Devices (Advice from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published June 19, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 3: Tips and Tricks from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published August 5, 2019




      




Finding Insurance, Reinbursement and other Financial Assistance

Medicare Home Oxygen Reimbursement

2020 Medicare by State

Medicare, Medicaid and Social Security

Medicare.gov: Find and Compare Information about Hospitals

Getting Assistance: From the Government, Social Services and other Misc Places


Must Read Publications

COPD Foundation’s Slim Skinny Reference Guide®

Adventures of an Oxyphile 2 Free Audiobook download of the second edition

PulmCC Free weekly email with latest in pulmonary and critical care

The Pulmonary Paper This is a paid subscription


         Click here for more books




Special Interest Patient Surveys

COPD PPRN Join the COPD Patient–Powered Research Network to help move COPD research forward

Members Personal Pages and Profiles

Stigma and Stereotypes.

New Survey 2007 Spiriva Update

Trans Tracheal Survey.


Questions and Answers by Professionals

Q & A Oxygen Equipment (Pete’s Posts)

Q & A Medical: Drs Karpick, Yeager and Petty

Q & A Respiratory Therapy/Specialists.

Q & A Transtracheal Oxygen (TTO)

Q & A Depression and COPD



New Meds, Trials, Investigational Equipment and Studies

Three links: (1) Evaluation of the Safety and Efficacy of TLD in Patients With COPD (AIRFLOW–3), (2) Contact Info to Participate at Temple Health, (3) NuvairaTM, see News “Nuvaira Hopes” dated September 11, 2019 Study current as of March 2020

Emphysema/COPD Research Registry [PA only] from Email dated June 25, 2019, Study current as of March 2020

The CAPTURE Study: Validating a Unique COPD Case Finding Tool in Primary Care (Aim) Last updated March 2020

UK 2019 — UK Trial Now Enrolling:←Article Assess Beta–Blocker’s Ability to Lessen Flares in COPD Patients Study→CHaRT link Study current as of March 2020

2019 — Portable Oxygen Concentrator Improvements to Physical Activity, Oxygen Usage, and Quality of Life in Chronic Obstructive Pulmonary Disease Patients Using Long–Term Oxygen Therapy Study current as of March 2020


RENEW and PneumRx™ Endobronchial Coil System: PneumRx® Coils are an investigational device in the United States and are under evaluation for the treatment of severe emphysema, limited by United States law to investigational use. It is not available for commercial sale in the United States.


Clinical Trials–Center Watch List

ClinicalConnection (US and International Trials)

Clinical Trials GPS

Clinical Trials — Government List

COPD Clinical Research Network


Smoking & Tobacco

Still Smoking with Emphysema?

Cigarette Anyone?

Patient Stories

Quitsters–Stop Smoking Group


NIDA Director Outlines Potential Risks to People Who Smoke and Use Drugs During COVID–19 Pandemic Published April 02, 2020

Nonsmoker Mortality Demonstrates Harm of Secondhand Smoke Published March 24, 2020

US Cigarette Packs Will Have Graphic Health Warnings Starting Next Year Published March 20, 2020

DNA Methylated CpG Sites Associated With Mortality in Current, Former Smokers Published February 21, 2020

Lung Cancer Mortality in Former Smokers Reduced With Low–Dose CT Screening Published February 12, 2020

Smoking Rates at All–Time Low, Surgeon General Reports Published January 23, 2020

Varenicline Initially Improves Continuous Abstention in Smokers With COPD Published January 16, 2020

Dual Use of E–Cigarettes and Combustible Cigarettes Increases Stroke Odds Published January 07, 2020

Congress May Raise Age to Buy Tobacco Products to 21 Published December 23, 2019

Secondhand Smoke May Increase Risk for Obstructive Sleep Apnea in Children Published December 20, 2019

E–Cigs Raise Risk of Chronic Lung Disease, Especially in Those Who Also Smoke, Study Finds Published December 20, 2019

E–Cigarette Use Is Independent Risk Factor for Chronic Lung Disease Published December 19, 2019

Evidence Supports Perioperative Nicotine Replacement Therapy Published December 19, 2019

FDA Approves Sale of Reduced–Nicotine Cigarettes Published December 17, 2019

History of Smoking Linked to Accelerated Decline in Lung Function Published December 3, 2019

CDC Updates Interim Guidance on Vaping–Related Lung Illness Published November 25, 2019

CDC: 20% of US Adults Currently Use Tobacco Products Published November 21, 2019

Ferret Model Demonstrates Role of Cigarette Smoke in Airway Clearance Published November 20, 2019

Vaping Injuries Raise New Concerns About Medical Marijuana Published November 19, 2019

Regardless of Cigarette Type, Smoking Associated With Increased Lung Cancer Risk, Mortality Published November 14, 2019

Double Lung Transplant Performed for Vaping–Related Illness Published November 14, 2019

Does Cardiorespiratory Fitness Affect Lung Cancer Risk Among Male Smokers? Published October 25, 2019

Accelerated Lung Function Decline Even in Low–Intensity Smokers Published October 23, 2019

Pulmonary Embolism With Tobacco Dependence Linked to 30–Day Readmission Published October 22, 2019

CDC Releases Clinical Guidance on E–Cigarette Lung Injury Published October 18, 2019

Any Level of Smoking Can Lead to Long–Term Lung Damage, Study Says Published October 18, 2019

Interim Guidance for Health Care Providers Evaluating and Caring for Patients with Suspected E–cigarette, or Vaping, Product Use Associated Lung Injury CDC Update Published October 11, 2019

FDA: Stop Using Vaping Products Containing THC Published October 9, 2019

Smoking Cessation Program in Cancer Setting Associated With High Abstinence Rates Published October 9, 2019

Survey: More Than 1 in 5 Millennials Use E–Cigarettes Published October 4, 2019

FDA Panel Votes on OTC Nicotine Mouth Spray for Smoking Cessation Published September 26, 2019

Vaping: The Threat to Public Health and the ATS Response Reviewed September 2019

Vaping Triggers Cellular Responses Similar to Cigarette Smoking, Potentially Increasing Risk of Emphysema Published September 24, 2019

Genetics Plus CT Highly Prognostic for Smokers’ Lung Cancer Risk Published September 13, 2019

Lung Cancer CT Scan Can Identify Smoking–Related Diseases Published August 30, 2019

Advisory from CDC re: Severe Pulmonary Disease Associated with Using E–Cigarette Products Published August 30, 2019

Glycopyrrolate Improves Lung Function in COPD, Regardless of Smoking Status Published July 19, 2019

Increasing USPSTF Lung Cancer Screening Eligibility in African American Smokers Published July 15, 2019

Can Vaping Cause Lung Problems? Published May 29, 2019

E-–Cigarette Use, Flavorings May Increase Heart Disease Risk, Study Finds Published May 27, 2019

COPD Exacerbation from Biomass Smoke Likened to Risk Posed By Tobacco Smoke, Study Cautions Published April 26, 2019

Smoking Cessation Key Component of Cancer Moonshot Program Published January 2, 2019