EFFORTS Living with COPD

📜🖊📨 Congress Must Act to Ensure Access to Supplemental Oxygen 📜🖊📨

Everyday Support & Explanations

COPD Pocket Consultant Guide App for iOS and Android: Support the treatment and management of COPD, therapy chart with the latest medications, inhaler instruction videos, depression and anxiety screeners, a new pulmonary referral checklist and much more

Educational videos and pocasts: Learn about COPD and healthier living : New videos added October 2022

Glossary of COPD words and terms
Encyclopedia of Respiratory Terminology: An interactive tool from John Hopkins School of Medicine

DailyMed Official provider of FDA label information

Causes, Symptoms, & Tips
- Basic Information
- Breathing Techniques
- Causes and Risk Factors of COPD
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, & Pulmonary Rehabilitation
- Helpful Organizations & Websites
- Medicines & Devices
- Nutrition
- Supplemental Oxygen, O₂ Equipment & Oximeters
- Personal Accounts of Lung Transplant Approvals
- Sleeping Disorders (Tired all the time)
- Stem Cell Article from Jim Nelson
- Surgeries (Transplant, LVRS, BVR, Stents)
- Travel (Including O₂ on Airlines)

⭐ COPD Exacerbations: A Patient and Physician’s Perspective John Linnell, John R Hurst November 8, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 1: Advice from 3 Respiratory Specialists Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published March 27, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 2: the Devices (Advice from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published June 19, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 3: Tips and Tricks from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published August 5, 2019

COPD Foundation: Oxygen Therapy

Find Pulmonary Rehabilitation

Find a Local Pulmonary Rehabilitation Program LiveBetter.org

The Basics of Pulmonary Rehabilitation from the American Lung Association Last Updated July 13, 2020

American Association of Cardiovascular & Pulmonary Rehabilitation — AACVPR Resources

Home Oxygen Therapy for Adults with Chronic Lung Disease. An Official American Thoracic Society Clinical Practice Guideline

10 Exercise Myths and Truths: Advice from a Respiratory Specialist Noah Greenspan Published April 12, 2019

Pulmonary Rehab Alternatives Can’t access pulmonary rehabilitation? Wonder what to do after completing pulmonary rehabilitation?

⛾ American Lung Assn Online Support Communities

Find a Physician — AMA

New Meds, Trials, and Studies

MAC Lung Infection
Have you been recently/newly diagnosed with a MAC lung infection? MAC is the most common form of nontuberculous mycobacteria (NTM). NTM are bacteria commonly found in the environment. MAC can get inside your lungs when you breathe them in and can affect certain people more than others. Most people who come in contact with MAC do not develop an infection. However, some individuals are at a greater risk of developing an infection called MAC lung disease. MAC lung disease is a serious condition. If untreated, it can cause damage to the lungs.

A new study is looking for individuals with newly diagnosed MAC lung disease who may be interested in participating in a clinical study that is evaluating a drug for potential treatment of MAC lung infections and for the potential to improve symptoms of MAC lung infection including decreased respiratory discomfort and decreased fatigue.

Your participation in the study could potentially contribute to advancements in MAC lung disease research.

You can visit https://www.patientwing.com/ntmstudy-arise-encore-COPD for more information and to see if you may qualify. If you qualify to enroll, and decide to participate, you will be assigned to one of two studies investigating MAC lung disease. Study open as of November 26, 2022

Study to Assess the Efficacy, Safety, and Tolerability of SAR440340/REGN3500/Itepekimab in Chronic Obstructive Pulmonary Disease (COPD) (AERIFY-2) dated Mar 23, 2022, sponsored by Sanofi Study open as of November 26, 2022

Pivotal Study to Assess the Efficacy, Safety and Tolerability of Dupilumab in Patients With Moderate to Severe COPD With Type 2 Inflammation (NOTUS) dated Feb 10, 2022, sponsored by Sanofi Study open as of November 26, 2022

🅰 Evaluation of the Safety and Efficacy of TLD in Patients With COPD (AIRFLOW–3) Nuvaira Lung Denervation System (Nuvaira System), Nuvaira’s Targeted Lung Denervation Therapy Shown to Lower Hospitalization Risk and see News “Nuvaira Hopes” dated September 11, 2019, sponsored by Nuvaira, Inc. Study open as of November 26, 2022

⚡ RejuvenAir® System Trial for COPD With Chronic Bronchitis (SPRAY–CB) sponsored by CSA Medical, see also RejuvenAir® Study open as of November 26, 2022

LEEP Losartan Effects on Emphysema Progression LEEP is a randomized clinical trial evaluating the effect of Losartan in helping people with Chronic Obstructive Pulmonary Disease (COPD) with emphysema – a disease of the lungs. We are looking for adults 40 years of age or older, current or former smokers, with COPD to join our study. The study is conducted in different states across the country. Study open as of November 26, 2022

🚬 Insight COPD Intervention Study In Overweight Patients with COPD We are trying to find out if a program proven to help people lose a modest amount of weight and increase their physical activity will improve COPD symptoms for those with a high BMI. To be in the study, you will need to have COPD, high BMI, history of smoking, shortness of breath, and be 40 years or older. Study open as of November 26, 2022

🚬 RETHINC REdefining Therapy IN early COPD The purpose of the RETHINC study is to determine whether symptomatic current and former smokers with normal lung function will benefit from the use of bronchodilator therapy currently used to treat patients who have Chronic Obstructive Pulmonary Disease (COPD). Study open as of November 26, 2022

🧪 Chronic Obstructive Pulmonary Disease Clinical Trials at UCSF 🧪 Trial list upated at least twice a week 🧪 Study open as of November 26, 2022

Emphysema/COPD Research Registry [PA only] Have COPD, 40 and up, 10 year smoking history Study open as of November 26, 2022

Pulmonary Fibrosis Click the link to find many clinical trials avilable offered for Idiopathic Pulmonary Fibrosis, Cystic Fibrosis, Pulmonary Fibrosis by Clinicaltrials.gov Current as of November 26, 2022

COPD Foundation Research Click Research on the main menu

📋 Find a Clinical Trial 📋 American Lung Association 📋

Clinical Trials GPS Find Trials by the US State

Center Watch List Find Trials across the World

ClinicalConnection Find US and International Trials

US NIH ClinicalTrials.gov Searched for trials for COPD, Chronic Obstructive Pulmonary Disease, Lung Disease, Lungs and more

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