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EFFORTS — PO Box 20241
Kansas City, MO 64195–0241
Ph: 1–866–END–COPD
The information on (or referenced by) the EFFORTS’ website and discussion lists is not intended or implied to be a substitute for the professional medical advice of your own healthcare providers.


As a patient advocacy group, we rely on your contributions/donations to maintain the mail list group, this website, and help board members attend conferences and to increase our participation in research.

When you shop at Amazon.com, please use this link to help support our EFFORTS organization, #StartWithaSmile at:

smile.amazon.com/ch/43–1870861

Amazon sends collected donations to charities quarterly. Thank you for your participation.

COPD Support Explanations Contacts and Surveys

State by State Guide to COVID–19

2020 US Health Depts by State for COVID–19 On one webpage is a current listing of all US States, territories, etc. It has links to their main pages, and wherever possible, their COVID—19 pages, languages available, phone numbers, and email addresses.

💲  Medical Survey  💲

Here is a great opportunity to help research and to receive $150 as a Thank You. This researcher has been “vetted” and found to be legitimate. They are selling nothing, simply conducting research interviews. The interviews are kept confidential and no one here online will be privy to the answers. Please look carefully at the qualifying conditions:
  • Diagnosed within the past year or two
  • Aged 40–70
  • Must be diagnosed with one of the following
    • COPD
    • Chronic Bronchitis
    • Emphysema
  • Current or past smokers
  • We do not want those currently using supplemental oxygen therapy
Please contact Maggie with LaGrippe Research. Tell them that the EFFORTS group sent you.

They are currently working on a project on the topic of COPD, Chronic Bronchitis, and Emphysema and would like to speak with those who have been recently diagnosed to discuss their journey so far and gain feedback on several topics related to these conditions.

At no point will they try to sell anyone anything and this is NOT a clinical trial. This will be in the form of a 75–minute web assisted interview, and those that qualify and participate will be compensated $150 as a thank you.

If you are interested, please fill out the preliminary questions online at SurveyMonkey If you have any questions, please contact Maggie at 847–373–4104 or email maggie@lagripperesearch.com Thank you!

Everyday Support & Explanations

COPD Pocket Consultant Guide App Ios and Andriod, Support the treatment and management of COPD, therapy chart with the latest medications, inhaler instruction videos, depression and anxiety screeners, a new pulmonary referral checklist and much more

Educational Videos and Pocasts Learn about COPD and healthier living New Videos added October 2019

Glossary of COPD Words and Terms

DailyMed Official provider of FDA label information

Haven’t Seen a Doctor and Not Sure if You Have COPD? Take the Canadian Lung Health Test

Causes, Symptoms, & Overviews
- Breathing Techniques
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, Rehabilitation
- Medicines & Devices
- Nutrition
- Oxygen, Oxygen Equipment & Oximeters
- Sleep Disorders, Apnea
- Stem Cell Article from Jim Nelson
- Surgery (Transplant, LVRS, BVR, Stents)
- Travel (including O2 on airlines)

⭐ COPD Exacerbations: A Patient and Physician’s Perspective John Linnell, John R Hurst November 8, 2019

Suggested Inhaler Sequence — Previous
Suggested Inhaler Sequence — Current


Oxygen Manifesto, Oxygen Manifesto, Part 1: Advice from 3 Respiratory Specialists Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published March 27, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 2: the Devices (Advice from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published June 19, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 3: Tips and Tricks from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published August 5, 2019




      




Finding Insurance, Reinbursement and other Financial Assistance

Medicare Home Oxygen Reimbursement

2020 Medicare by State

Medicare, Medicaid and Social Security

Medicare.gov: Find and Compare Information about Hospitals

Getting Assistance: From the Government, Social Services and other Misc Places


Must Read Publications

COPD Foundation’s Slim Skinny Reference Guide®

Adventures of an Oxyphile 2 Free Audiobook download of the second edition

PulmCC Free weekly email with latest in pulmonary and critical care

The Pulmonary Paper This is a paid subscription


         Click here for more books




Special Interest Patient Surveys

COPD PPRN Join the COPD Patient–Powered Research Network to help move COPD research forward

Members Personal Pages and Profiles

Stigma and Stereotypes

New Survey 2007 Spiriva Update

Trans Tracheal Survey


Questions and Answers by Professionals

Q & A Oxygen Equipment (Pete’s Posts)

Q & A Medical: Drs Karpick, Yeager and Petty

Q & A Respiratory Therapy/Specialists

Q & A Transtracheal Oxygen (TTO)

Q & A Depression and COPD



New Meds, Trials, and Studies

Pulmonary Fibrosis Click the link to find many clinical trials avilable offered for Idiopathic Pulmonary Fibrosis, Cystic Fibrosis, Pulmonary Fibrosis by Clinicaltrials.gov Study current as of July 2020

LEEP Losartan Effects on Emphysema Progression LEEP is a randomized clinical trial evaluating the effect of Losartan in helping people with Chronic Obstructive Pulmonary Disease (COPD) with emphysema – a disease of the lungs. We are looking for adults 40 years of age or older, current or former smokers, with COPD to join our study. The study is conducted in different states across the country. Study current as of July 2020

Three links: (1) Evaluation of the Safety and Efficacy of TLD in Patients With COPD (AIRFLOW–3), (2) Contact Info to Participate at Temple Health, (3) NuvairaTM, see News “Nuvaira Hopes” dated September 11, 2019 Study current as of July 2020

Emphysema/COPD Research Registry [PA only] Focusing on those who have had COVID–19 Study current as of July 2020

UK 2019 — UK Trial Now Enrolling:←Article Assess Beta–Blocker’s Ability to Lessen Flares in COPD Patients Study→CHaRT link ON HOLD DUE TO COVID–19 Study on hold as of July 2020

2019 — Portable Oxygen Concentrator Improvements to Physical Activity, Oxygen Usage, and Quality of Life in Chronic Obstructive Pulmonary Disease Patients Using Long–Term Oxygen Therapy Study current as of July 2020


Clinical Trials–Center Watch List

ClinicalConnection (US and International Trials)

Clinical Trials GPS

Clinical Trials — Government List

COPD Clinical Research Network


Smoking & Tobacco

Still Smoking with Emphysema?

Cigarette Anyone?

Patient Stories

Quitsters–Stop Smoking Group


E–Cigarette Use Increased Significantly From 2017 to 2018 Published Sept 17, 2020

Lung DNA Methylation in COPD May Differ by Smoking Status, Airflow Limitation Published Sept 15, 2020

Vaping, Marijuana Use in 2019 Rose in College–Age Adults Published Sept 15, 2020

Is the Increase in Teen Vaping Affecting Lung Cancer Rates? Published Sept 14, 2020

Transcranial Magnetic Stimulation Device Cleared for Smoking Cessation Published Aug 28, 2020

COPD and Smoking May Be Associated With More Severe Outcomes in COVID–19 Published Aug 20, 2020

E–Cigarette Use Linked to Increased Odds of COVID–19 Published Aug 14, 2020

Adolescents Who Use E–Cigarettes, Marijuana May Have Higher Odds of Lifetime Asthma Published Aug 07, 2020

Smokers With Sleep Disturbances Are Less Likely to Quit Smoking Published Aug 05, 2020

Varenicline Strongly Recommended for Smoking Cessation Published Aug 03, 2020

Menthol Cigarette Ban May Reduce Smoking Rates Published July 27, 2020

Survivors of Smoking–Related Cancers Likely to Continue Smoking Published July 24, 2020

FDA Issues Warning Letters Regarding Illegal Sales of Vape Products Published July 23, 2020

Unfortunately, Ex–Smokers Still Face Increased Health Risks Published July 22, 2020

Nonsmoking Young Adults Less Vulnerable to Severe COVID–19 Published July 21, 2020

Cartoons Still Common in Online E–Cig Marketing Published July 20, 2020

USPSTF: Extend Eligibility for CT Lung Cancer Screening Published July 7, 2020

Heat–Not–Burn Cigarettes Win Coveted Marketing Claims Published July 7, 2020

Canadian Government Restrictions on E&ndashCigarette Marketing Lower Use Published July 6, 2020

Subclinical Vascular Damage From Vaping May Spell Long–Term Ills Published June 25, 2020

Short–Term Secondhand Smoke Exposure Effects in Asthma vs COPD Published June 24, 2020

Smoking and COVID–19 From Email Received June 16, 2020

NIH Study Links Cigarette Smoking to Higher Stroke Risk in African Americans Published June 10, 2020

Lung Development May Explain Why Some Non–Smokers Get COPD and Some Heavy Smokers Do Not Published June 09, 2020

Maternal Smoking During Pregnancy May Increase Incidence of Adult–Onset Asthma in Offspring Published June 05, 2020

COPD, Smoking Increase Death Risk in COVID–19 Patients, Study Says Published June 02, 2020

Does Patient Interest Show a Need for Cessation Programs in Lung Cancer Multidisciplinary Clinics? Published June 2, 2020

Statement from José Luis Castro, President and CEO of Vital Strategies on World No Tobacco Day, May 31, 2020 Published May 28, 2020

Tobacco Smoke Exposure Limits Benefits of CFTR Modulators in Cystic Fibrosis Published May 20, 2020

Current and Former Smokers With COPD Have Risk for Cognitive Impairment Published May 18, 2020

Differences in Anxiety, Depression According to Current and Former Smoking Status Published May 13, 2020

Gut Microbiome: Link Between Smoking and Cancer? Published May 04, 2020

High E–Cig Use by US Adults Who Just Quit Regular Cigarettes Published April 30, 2020

NIH COVID–19 Guidelines; Vaping–Related Deaths: It’s TTHealthWatch! Published April 25, 2020

Removal of Juul Flavored E–Cigarette Products Likely Ineffective Published April 22, 2020

Regional Differences in Scale of Harm Caused by Secondhand Smoke Published April 20, 2020

Legal Marijuana Tied to Lower Rates of Vaping Illness Published April 06, 2020

NIDA Director Outlines Potential Risks to People Who Smoke and Use Drugs During COVID–19 Pandemic Published April 02, 2020

Nonsmoker Mortality Demonstrates Harm of Secondhand Smoke Published March 24, 2020

US Cigarette Packs Will Have Graphic Health Warnings Starting Next Year Published March 20, 2020

DNA Methylated CpG Sites Associated With Mortality in Current, Former Smokers Published February 21, 2020

Lung Cancer Mortality in Former Smokers Reduced With Low–Dose CT Screening Published February 12, 2020

Smoking Rates at All–Time Low, Surgeon General Reports Published January 23, 2020

Varenicline Initially Improves Continuous Abstention in Smokers With COPD Published January 16, 2020

Dual Use of E–Cigarettes and Combustible Cigarettes Increases Stroke Odds Published January 07, 2020

Congress May Raise Age to Buy Tobacco Products to 21 Published December 23, 2019

Secondhand Smoke May Increase Risk for Obstructive Sleep Apnea in Children Published December 20, 2019

E–Cigs Raise Risk of Chronic Lung Disease, Especially in Those Who Also Smoke, Study Finds Published December 20, 2019

E–Cigarette Use Is Independent Risk Factor for Chronic Lung Disease Published December 19, 2019

Evidence Supports Perioperative Nicotine Replacement Therapy Published December 19, 2019

FDA Approves Sale of Reduced–Nicotine Cigarettes Published December 17, 2019

History of Smoking Linked to Accelerated Decline in Lung Function Published December 3, 2019

CDC Updates Interim Guidance on Vaping–Related Lung Illness Published November 25, 2019

CDC: 20% of US Adults Currently Use Tobacco Products Published November 21, 2019

Ferret Model Demonstrates Role of Cigarette Smoke in Airway Clearance Published November 20, 2019

Vaping Injuries Raise New Concerns About Medical Marijuana Published November 19, 2019

Regardless of Cigarette Type, Smoking Associated With Increased Lung Cancer Risk, Mortality Published November 14, 2019

Double Lung Transplant Performed for Vaping–Related Illness Published November 14, 2019

Does Cardiorespiratory Fitness Affect Lung Cancer Risk Among Male Smokers? Published October 25, 2019

Accelerated Lung Function Decline Even in Low–Intensity Smokers Published October 23, 2019

Pulmonary Embolism With Tobacco Dependence Linked to 30–Day Readmission Published October 22, 2019

CDC Releases Clinical Guidance on E–Cigarette Lung Injury Published October 18, 2019

Any Level of Smoking Can Lead to Long–Term Lung Damage, Study Says Published October 18, 2019

Interim Guidance for Health Care Providers Evaluating and Caring for Patients with Suspected E–cigarette, or Vaping, Product Use Associated Lung Injury CDC Update Published October 11, 2019

FDA: Stop Using Vaping Products Containing THC Published October 9, 2019

Smoking Cessation Program in Cancer Setting Associated With High Abstinence Rates Published October 9, 2019

Survey: More Than 1 in 5 Millennials Use E–Cigarettes Published October 4, 2019

FDA Panel Votes on OTC Nicotine Mouth Spray for Smoking Cessation Published September 26,2019

Vaping: The Threat to Public Health and the ATS Response Reviewed September 2019

Vaping Triggers Cellular Responses Similar to Cigarette Smoking, Potentially Increasing Risk of Emphysema Published September 24, 2019

Genetics Plus CT Highly Prognostic for Smokers’ Lung Cancer Risk Published September 13, 2019

Lung Cancer CT Scan Can Identify Smoking–Related Diseases Published August 30,2019

Advisory from CDC re: Severe Pulmonary Disease Associated with Using E–Cigarette Products Published August 30, 2019

Glycopyrrolate Improves Lung Function in COPD, Regardless of Smoking Status Published July 19, 2019

Increasing USPSTF Lung Cancer Screening Eligibility in African American Smokers Published July 15,2019

Can Vaping Cause Lung Problems? Published May 29, 2019

E-–Cigarette Use, Flavorings May Increase Heart Disease Risk, Study Finds Published May 27, 2019

COPD Exacerbation from Biomass Smoke Likened to Risk Posed By Tobacco Smoke, Study Cautions Published April 26, 2019

Smoking Cessation Key Component of Cancer Moonshot Program Published January 2, 2019