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November is National COPD & Alpha–1 Awareness Month


EFFORTS — PO Box 20241
Kansas City, MO 64195–0241
Ph: 1–866–END–COPD
The information on (or referenced by) the EFFORTS’ website and discussion lists is not intended or implied to be a substitute for the professional medical advice of your own healthcare providers.


As a patient advocacy group, we rely on your contributions/donations to maintain the mail list group, this website, and help board members attend conferences and to increase our participation in research.

When you shop at Amazon.com, please use this link to help support our EFFORTS organization, #StartWithaSmile at:, #StartWithaSmile at:

smile.amazon.com/ch/43–1870861

Amazon sends collected donations to charities quarterly. Thank you for your participation.


Everyday Support and Explanations Including Contacts and Surveys



Clinical Trials

LEEP Losartan Effects on Emphysema Progression LEEP is a randomized clinical trial evaluating the effect of Losartan in helping people with Chronic Obstructive Pulmonary Disease (COPD) with emphysema – a disease of the lungs. We are looking for adults 40 years of age or older, current or former smokers, with COPD to join our study. The study is conducted in different states across the country.


Everyday Support & Explanations

COPD Pocket Consultant Guide App Ios and Andriod, Support the treatment and management of COPD, therapy chart with the latest medications, inhaler instruction videos, depression and anxiety screeners, a new pulmonary referral checklist and much more

Educational Videos and Pocasts Learn about COPD and healthier living New Videos added October 2019

Glossary of COPD Words and Terms

Haven’t Seen a Doctor and Not Sure if You Have COPD? Take the Canadian Lung Health Test

Causes, Symptoms, & Overviews
- Breathing Techniques
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, Rehabilitation
- Medicines & Devices
- Nutrition
- Oxygen, Oxygen Equipment & Oximeters
- Sleep Disorders, Apnea
- Stem Cell Article from Jim Nelson
- Surgery (Transplant, LVRS, BVR, Stents)
- Travel (including O2 on airlines)

⭐ COPD Exacerbations: A Patient and Physician’s Perspective John Linnell, John R Hurst November 8, 2019

Suggested Inhaler Sequence — Previous
Suggested Inhaler Sequence — Current


Oxygen Manifesto, Oxygen Manifesto, Part 1: Advice from 3 Respiratory Specialists Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published March 27, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 2: the Devices (Advice from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published June 19, 2019

Oxygen Manifesto, Oxygen Manifesto, Part 3: Tips and Tricks from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published August 5, 2019


Local Pulmonary Rehabilitation Programs - EFFORTS List

Find a Local Pulmonary Rehabilitation Program LiveBetter.org


American Association of Cardiovascular & Pulmonary Rehabilitation — AACVPR Resources

10 Exercise Myths and Truths: Advice from a Respiratory Specialist Noah Greenspan Published April 12, 2019

Pulmonary Rehab Alternatives Can’t access pulmonary rehabilitation? Wonder what to do after completing pulmonary rehabilitation?


Find a Local Support Group

Find a Physician — AMA


      




Finding Insurance, Reinbursement and other Financial Assistance

Medicare Home Oxygen Reimbursement

👉📅❗ Medicare Open Enrollment 2020 — Open Enrollment Ends December 7th

Medicare, Medicaid and Social Security

Medicare.gov: Find and Compare Information about Hospitals

Getting Assistance: From the Government, Social Services and other Misc Places


Must Read Publications

COPD Foundation’s Slim Skinny Reference Guide®

Adventures of an Oxyphile 2 Free download of the second edition

Adventures of an Oxyphile 2 Free Audiobook download of the second edition

PulmCC Free weekly email with latest in pulmonary and critical care

The Pulmonary Paper This is a paid subscription


         Click here for more books



Special Interest Patient Surveys

COPD PPRN Join the COPD Patient–Powered Research Network to help move COPD research forward

Members Personal Pages and Profiles

Stigma and Stereotypes.

New Survey 2007 Spiriva Update

Trans Tracheal Survey.



Questions and Answers by Professionals

Q & A Oxygen Equipment (Pete’s Posts)

Q & A Medical: Drs Karpick, Yeager and Petty

Q & A Respiratory Therapy/Specialists.

Q & A Transtracheal Oxygen (TTO)

Q & A Depression and COPD



New Meds, Trials, Investigational Equipment and Studies

Evaluation of the Safety and Efficacy of TLD in Patients With COPD (AIRFLOW–3), Contact Info to Participate at Temple Health, NuvairaTM, see News “Nuvaira Hopes” dated September 11, 2019

Emphysema/COPD Research Registry [PA only] from Email dated June 25, 2019

The CAPTURE Study: Validating a Unique COPD Case Finding Tool in Primary Care (Aim)

UK 2019 — UK Trial Now Enrolling:←Article Assess Beta–Blocker’s Ability to Lessen Flares in COPD Patients Study→CHaRT link

2019 — Portable Oxygen Concentrator Improvements to Physical Activity, Oxygen Usage, and Quality of Life in Chronic Obstructive Pulmonary Disease Patients Using Long–Term Oxygen Therapy

RENEW and PneumRx™ Endobronchial Coil System: PneumRx® Coils are an investigational device in the United States and are under evaluation for the treatment of severe emphysema, limited by United States law to investigational use. It is not available for commercial sale in the United States.


Clinical Trials–Center Watch List

ClinicalConnection (US and International Trials)

Clinical Trials GPS

Clinical Trials — Government List

COPD Clinical Research Network