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Everyday Support and Explanations Including Contacts and Surveys

Everyday Support & Explanations

COPD Pocket Consultant Guide App: Ios and Andriod, Support the treatment and management of COPD, therapy chart with the latest medications, inhaler instruction videos, depression and anxiety screeners, a new pulmonary referral checklist and much more

Educational Videos and Pocasts: Learn about COPD and healthier living

Glossary of COPD Words and Terms

Causes, Symptoms, & Overviews
- Breathing Techniques
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, Rehabilitation
- Medicines & Devices
- Nutrition
- Oxygen, Oxygen Equipment & Oximeters
- Sleep Disorders, Apnea
- Stem Cell Article from Jim Nelson
- Surgery (Transplant, LVRS, BVR, Stents)
- Travel (including O2 on airlines)

Suggested Inhaler Sequence — Previous
Suggested Inhaler Sequence — Current

Oxygen Manifesto, Part 1: Advice from 3 Respiratory Specialists Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem Published March 27, 2019

American Association of Cardiovascular & Pulmonary Rehabilitation — AACVPR Resources

10 Exercise Myths and Truths: Advice from a Respiratory Specialist Noah Greenspan Published April 12, 2019

Pulmonary Rehab Alternatives: Can’t access pulmonary rehabilitation? Wonder what to do after completing pulmonary rehabilitation?

Find a Local Support Group

Find a Physician — AMA

Hospitals Offering Zephyr Valve Treatment
Members Stories on Valve Trials & Treatments

Finding Insurance, Reinbursement and other Financial Assistance

Medicare Home Oxygen Reimbursement

Medicare, Medicaid and Social Security

Medicare.gov: Find and Compare Information about Hospitals

Getting Assistance: From the Government, Social Services and other Misc Places

Must Read Publications

COPD Foundation’s Slim Skinny Reference Guide®

Adventures of an Oxyphile 2 Free download of the second edition

Adventures of an Oxyphile 2 Free Audiobook download of the second edition

PulmCC Free weekly email with latest in pulmonary and critical care

The Pulmonary Paper: This is a paid subscription

         Click here for more books

Special Interest Patient Surveys

COPD PPRN: Join the COPD Patient–Powered Research Network to help move COPD research forward

Members Personal Pages and Profiles

Stigma and Stereotypes

New Survey 2007 Spiriva Update

Trans Tracheal Survey

Questions and Answers by Professionals

Q & A Oxygen Equipment: (Pete’s Posts)

Q & A Medical: Drs Karpick, Yeager and Petty

Q & A Respiratory Therapy/Specialists

Q & A Transtracheal Oxygen (TTO)

Q & A Depression and COPD

New Meds, Trials and Studies

UK 2019 UK Trial Now Enrolling: Assess Beta–Blocker’s Ability to Lessen Flares in COPD Patients

2019 Portable Oxygen Concentrator Improvements to Physical Activity, Oxygen Usage, and Quality of Life in Chronic Obstructive Pulmonary Disease Patients Using Long–Term Oxygen Therapy

2019 Recruiting for COPD & Sleep Apnea Study: The COPD Foundation and American Sleep Apnea Association O2VERLAP Study

Clinical Trials–Center Watch List

ClinicalConnection (US and International Trials)

Clinical Trials GPS

Clinical Trials — Government List

RENEW Clinical Study evaluating the RePneu® system

Current/former smokers (Boston)

COPD Clinical Research Network